GETTING THE DIAGNOSIS

Each person will respond differently upon learning they have a serious eye condition. Shock, disbelief, depression, and anger are common reactions. These feelings can last for days, weeks, months, or even years. It can be frustrating for caregivers and family members if a person who is visually impaired or blind has a very negative attitude; however, it is important to remember that a supportive and caring environment is key to successful rehabilitation.

Try not to be overprotective. Sometimes, caregivers, family, and friends can show their concern and support just by "being there." Friendly visits and organized outings can be of great benefit. Humour is also an effective way to cope with the challenges presented to people who are blind or visually impaired. Though laughter is often the best medicine, don't use it just to mask a hurtful experience.

Adjustment to any form of vision loss can be a gradual and often emotional process. Here are some ideas to consider as the person receiving care works towards accepting the diagnosis:

  • Obtain as much information as you can about the condition of the person you are caring for and how it affects sight. Share the information with the person.
  • Find support groups and other resources within the person's community. For those countries where the AMD Alliance International has members you will find links to organizations of and for visually impaired people in the Regional Sections of this site.
  • Encourage family and friends to visit and support the person.
  • Allow the person you are caring for time to grieve for his lost vision.